Who Treats Hemophilia Patients?

• Lab medical technologists and pathologists.
• Hematologists (doctors who specialize in blood)
• Orthopedists (doctors who specialize in bones, joints, and muscles)
• Physical therapists.
• Nurses.
• Social workers and other mental health professionals.

How does a doctor treat a person who suffers from hemophilia?

The best way to treat hemophilia is to replace the missing blood clotting factor so that the blood can clot properly. This is typically done by injecting treatment products, called clotting factor concentrates, into a person’s vein.

Does a hematologist treat hemophilia?

Hemophilia

A hematologist will suggest how to treat hemophilia , but there are hormones and clotting medications that can make the condition manageable.

What organizations help with hemophilia?

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for bleeding and clotting disorders through education, advocacy, and research. The Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community.

What is the primary treatment for hemophilia?

Now the primary type of hemophilia treatment is replacement therapy : Concentrates of clotting factor VIII (for hemophilia A) or clotting factor IX (for hemophilia B) are injected into a patient’s vein to replace low or missing factor. These concentrates have traditionally been made from human blood.

Is hemophilia A or B worse?

Recent evidence suggests that hemophilia B is clinically less severe than hemophilia A , highlighting the need to discuss further therapeutic options for each type of hemophilia. The study, “Haemophilia B is clinically less severe than haemophilia A: further evidence,” was published in Blood Transfusion.

What foods to avoid if you have hemophilia?

• large glasses of juice.
• soft drinks, energy drinks, and sweetened tea.
• heavy gravies and sauces.
• butter, shortening, or lard.
• full-fat dairy products.
• candy.
• foods containing trans fats, including fried. foods and baked goods (pastries, pizza, pie, cookies, and crackers)

Why would a doctor refer you to a hematologist?

If your primary care physician has recommended that you see a hematologist, it may be because you are at risk for a condition involving your red or white blood cells, platelets, blood vessels, bone marrow, lymph nodes, or spleen . Some of these conditions are: hemophilia, a disease that prevents your blood from clotting.

Can hemophilia be cured?

There is currently no cure for hemophilia . Effective treatments do exist, but they are expensive and involve lifelong injections several times per week to prevent bleeding.

What is the life expectancy of someone with hemophilia?

During this period, it exceeded mortality in the general population by a factor of 2.69 (95% confidence interval [CI]: 2.37-3.05), and median life expectancy in severe hemophilia was 63 years .

How can I help someone with hemophilia?

1. Encourage safe activities. ...
2. Have ice packs and bandages handy. ...
3. Lend a hand (literally!) ...
4. Help administer medications. ...
5. Be a chauffeur. ...
6. Stay informed. ...
7. Takeaway.

Is there help available for families with hemophilia?

Individuals with hemophilia and von Willebrand disease may qualify for assistance for coordination of care and payment for medical costs from the state of California through California Children Services (CCS) , for youth under 21, and the Genetically Handicapped Persons Program (GHPP), for adults or individuals under 21 ...

Is haemophilia genetic?

This change in a copy of the gene making factor VIII or factor IX is called a hemophilia allele. Most people who have hemophilia are born with it. It almost always is inherited (passed down) from a parent to a child .

At what age is hemophilia diagnosed?

In the United States, most people with hemophilia are diagnosed at a very young age. Based on CDC data, the median age at diagnosis is 36 months for people with mild hemophilia , 8 months for those with moderate hemophilia, and 1 month for those with severe hemophilia.

What is it like to live with hemophilia?

Without appropriate treatment, many hemophiliacs will die before adulthood. With treatment, the average life expectancy of someone with the disease is just 10 years less than the average man’s . In the 1960s, the average lifespan for a boy with hemophilia was just 11 years old.

How do you stop a hemophiliac from bleeding?

1. Apply pressure with sterile gauze, a bandage, or a clean cloth.
2. Place another bandage over the first if blood soaks through the bandage, and continue to apply pressure.
3. Raise the injured body part to slow bleeding.