It is
more prevalent among Asians
and Africans than Caucasians, with women affected more often than men, and it is usually maximal at birth, decreasing with age [1].
What percentage of the population have EDS?
The combined prevalence of all types of Ehlers-Danlos syndrome appears to be
at least 1 in 5,000 individuals
worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people.
Which type of Ehlers Danlos is most common?
Hypermobile EDS (hEDS)
is the most common type. Other types of EDS include classical EDS, vascular EDS and kyphoscoliotic EDS.
What celebrity has Ehlers Danlos?
Australian singer/songwriter Sia
(born Sia Kate Isobelle Furler), 43, is known for wearing elaborate wigs and headpieces that hide her face. However, the “Chandelier” singer is not hiding the fact that she was recently diagnosed with the connective tissue disorder
Are all people with EDS Hypermobile?
While every zebra has a unique set of stripes—and every person living with Ehlers-Danlos has a unique set of symptoms—joint hypermobility, a characteristic most often associated with hypermobile Ehlers-Danlos syndrome (hEDS), the most common type of EDS, is
part of almost every diagnosis
.
Does EDS affect teeth?
Ehlers-Danlos syndrome (EDS)
can adversely impact upon the function
of the mouth and in turn potentially lessen quality of life. While many people with EDS not have any notable oral problems specifically due to EDS, this connective tissue disorder
Why are EDS patients called zebras?
According to the international Ehlers-Danlos Society, the reference to zebras is borrowed from a common expression heard in medicine:
“When you hear hoofbeats behind you, don’t expect to see a zebra
.” In other words, medical professionals are typically taught to look out for more-common ailments rather than testing for …
Does EDS get worse with age?
The most common types of EDS (classical, classical-like, and hypermobile
At what age is Ehlers-Danlos Syndrome diagnosed?
The age at first diagnosis peaked in the age group
5–9 years for men and 15–19 years for women
(see figure 2). There was a significant difference of 8.5 years in the mean age of diagnosis between men and women (95% CI: 7.70 to 9.22): 9.6 years in EDS (95% CI: 6.85 to 12.31) and 8.3 years in JHS (95% CI: 7.58 to 9.11).
How rare is hypermobility EDS?
The combined prevalence of all types of Ehlers-Danlos syndrome appears to be
at least 1 in 5,000 individuals worldwide
. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people.
Does EDS affect the eyes?
Ophthalmological abnormalities in EDS include but
are not limited to myopia, retinal detachment and glaucoma
. Some of these can be vision-threatening. An optometrist or ophthalmologist should establish a comprehensive baseline for a person with EDS, including a complete eye exam and history.
Is Ehlers-Danlos a disability?
Can I Get Disability For Ehlers-Danlos Syndrome (EDS)? The answer is that Ehlers-Danlos Syndrome (EDS)
can be a disabling condition
, depending on how it presents. EDS is a genetic disorder affecting connective tissues and causing an array of serious physical problems, ranging from joint pain to cardiovascular issues.
Does Ehlers-Danlos make you look older?
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients
look younger
and can also cause skin to feel extremely soft. Doctor’s even describe the skin as “velvet-soft”.
Can hypermobility affect teeth?
Various types of Ehlers-Danlos syndromes can affect the teeth, gums and other oral structures. Hypermobility of the temporomandibular (jaw) joint can
result in dislocations, facial and head pain
.
What is the life expectancy of a person with EDS?
People affected by vascular EDS have a
median life expectancy of 48 years
and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
