Blood transfusions may be needed if major blood loss has occurred. This is when your child gets donated blood.
Self-infused factor VIII or IX
can allow a child with hemophilia to lead a near normal lifestyle.
What intervention should be avoided in patients with hemophilia?
Contact sports — such as football, hockey or wrestling — are not safe for people with hemophilia.
Avoid certain pain medications
. Drugs that can aggravate bleeding include aspirin and ibuprofen (Advil, Motrin IB, others). Instead, use acetaminophen (Tylenol, others), which is a safer alternative for mild pain relief.
What is the best treatment for hemophilia?
The best way to treat hemophilia is to
replace the missing blood clotting factor so that the
blood can clot properly. This is typically done by injecting treatment products, called clotting factor concentrates, into a person's vein.
What can educators do to help students with hemophilia?
Make sure your students with hemophilia have
individualized care plans
, and be ready to respond as explained in the plan. Let assignments and class work be made up at home in cases of absences or missed class time. In some cases, homebound instruction or tutoring might be appropriate.
How do you care for someone with hemophilia?
- Encourage safe activities. …
- Have ice packs and bandages handy. …
- Lend a hand (literally!) …
- Help administer medications. …
- Be a chauffeur. …
- Stay informed.
What foods to avoid if you have hemophilia?
- large glasses of juice.
- soft drinks, energy drinks, and sweetened tea.
- heavy gravies and sauces.
- butter, shortening, or lard.
- full-fat dairy products.
- candy.
- foods containing trans fats, including fried. foods and baked goods (pastries, pizza, pie, cookies, and crackers)
Can hemophilia go away?
It lasts all of your life and it will not go away
. Hemophilia occurs mainly in males but females can carry the gene that causes it and may or may not have bleeding problems. Some children with hemophilia have no family history of the disorder.
Can hemophilia patients take Covid vaccine?
Emicizumab is a monoclonal antibody that is used to prevent bleeding in people with hemophilia A. Other monoclonal antibodies have been and are being developed as treatments for COVID-19 infections.
You can and should receive a vaccine even
if you are taking emicizumab to prevent bleeding.
How do you stop bleeding if you have hemophilia?
- Apply pressure with sterile gauze, a bandage, or a clean cloth.
- Place another bandage over the first if blood soaks through the bandage, and continue to apply pressure.
- Raise the injured body part to slow bleeding.
Why isn't there a cure for hemophilia?
There's
no cure
for hemophilia, but scientists are making progress. They're coming up with ways to put healthy genes into the cells of people with hemophilia so their blood clots normally. Hemophilia has no cure (yet), but changes are on the way.
How does hemophilia affect a child?
Key points about hemophilia in children
It causes an affected
child to have low levels of blood clotting factors
. The most common symptom of hemophilia is increased, uncontrollable bleeding. Giving factor VIII or IX can allow a child with hemophilia to lead a near normal lifestyle.
How does hemophilia affect learning?
Many adults with hemophilia B (94%) reported that hemophilia had a negative effect on their ability to complete a formal education, often attributed to the
inability to attend or concentrate in school
as a result of hemophilia-related bleeding or pain.
What is life like with hemophilia?
Treatment for people with hemophilia has improved dramatically over the past few decades. With access to clotting factor, many people can now prevent major bleeds and
live a normal life
. However, around 30 percent of those with the disease will die from a bleeding-related incident.
Is there a cure coming soon for hemophilia?
There is currently no cure for hemophilia
. Effective treatments do exist, but they are expensive and involve lifelong injections several times per week to prevent bleeding.
Can you have a baby if you have hemophilia?
If the mother is a hemophilia carrier,
there is a chance that the baby will be born with hemophilia
. In families with a known history of hemophilia, or in those with a prenatal genetic diagnosis of hemophilia, one can plan special testing for hemophilia before the baby's delivery.
Does hemophilia get worse with age?
Many of the complications of hemophilia, including intracranial hemorrhage, joint disease, and inhibitor development,
increase with increasing age
.
