Many patients still die before adulthood due to inadequate treatment. With proper treatment, life expectancy is only about 10 years less than healthy men. Overall, the death rate for people with hemophilia is about twice that of the rate for healthy men. For
severe hemophilia, the rate is four to six times higher
.
What are the possible outcomes of hemophilia?
Hemophilia can result in:
Bleeding within joints that can lead to chronic joint disease and pain
.
Bleeding in the head and sometimes in the brain
which can cause long term problems, such as seizures and paralysis. Death can occur if the bleeding cannot be stopped or if it occurs in a vital organ such as the brain.
How treatable is hemophilia?
Hemophilia is an inherited genetic condition. This
condition isn’t curable
, but it can be treated to minimize symptoms and prevent future health complications. In extremely rare cases, hemophilia can develop after birth.
Can hemophiliacs heal?
There is no cure for hemophilia at this time
, but there is medicine people can take. This medicine helps them stop bleeding so they can do most of the things everyone else does.
Why isn’t there a cure for hemophilia?
There’s
no cure
for hemophilia, but scientists are making progress. They’re coming up with ways to put healthy genes into the cells of people with hemophilia so their blood clots normally. Hemophilia has no cure (yet), but changes are on the way.
What foods to avoid if you have hemophilia?
- large glasses of juice.
- soft drinks, energy drinks, and sweetened tea.
- heavy gravies and sauces.
- butter, shortening, or lard.
- full-fat dairy products.
- candy.
- foods containing trans fats, including fried. foods and baked goods (pastries, pizza, pie, cookies, and crackers)
Why females are not affected by haemophilia?
“Growing up, we understood that men had hemophilia and women were “carriers.” Women passed along the X-linked gene, but did not actually get hemophilia
because (it was believed) that the “good X chromosome” compensated for the X chromosome that carried hemophilia
.
Who is most affected by hemophilia?
Affected Populations
Hemophilia A mostly affects
males
but females can also be affected. Approximately 1 in 5,000 newborn males have hemophilia A. Approximately 60% of individuals with hemophilia A have a severe form of the disorder. All racial and ethnic groups are equally affected by hemophilia.
Which type of hemophilia is more severe?
Hemophilia A
affects 1 in 5,000 to 10,000 males. Hemophilia B is less common, affecting 1 in 25,000 to 30,000 males. Around 60% to 70% of people with hemophilia A have the severe form of the disorder and about 15% have the moderate form. The rest have mild hemophilia.
Is hemophilia A or B worse?
Recent evidence suggests that
hemophilia B is clinically less severe than hemophilia A
, highlighting the need to discuss further therapeutic options for each type of hemophilia. The study, “Haemophilia B is clinically less severe than haemophilia A: further evidence,” was published in Blood Transfusion.
What should you not do if you have hemophilia?
To avoid excessive bleeding and protect your joints:
Exercise regularly
. Activities such as swimming, bicycle riding and walking can build up muscles while protecting joints. Contact sports — such as football, hockey or wrestling — are not safe for people with hemophilia.
Can you have a baby if you have hemophilia?
If the mother is a hemophilia carrier,
there is a chance that the baby will be born with hemophilia
. In families with a known history of hemophilia, or in those with a prenatal genetic diagnosis of hemophilia, one can plan special testing for hemophilia before the baby’s delivery.
Can hemophilia be fatal?
Even though the disorder is rare, acquired hemophilia is a serious condition in which severe bleeding can occur in a significant number (70%) of cases and it is
fatal in about five to ten percent of the cases
[8,16].
Can hemophilia be cured with gene therapy?
Gene therapy offers the
potential for a cure
for patients with hemophilia by establishing continuous endogenous expression of factor VIII or factor IX (FIX) following transfer of a functional gene to replace the hemophilic patient’s own defective gene.
Does hemophilia shorten life expectancy?
Many patients still die before adulthood due to inadequate treatment. With proper treatment, life expectancy is only about
10 years less than healthy men
. Overall, the death rate for people with hemophilia is about twice that of the rate for healthy men. For severe hemophilia, the rate is four to six times higher.
Can people with hemophilia drink?
If you have had a lot of alcohol to drink, you
can become drunk
. You may start to stagger, lose coordination, slur your speech, and be confused and disoriented. You might become very friendly and talkative or you could become angry and aggressive. Alcohol will also slow down your reaction time.
