What Organizations Help With Hemophilia? - Fixanswer

Treatment With

Replacement Therapy

. The main treatment for hemophilia is called replacement therapy. Concentrates of clotting factor VIII (for hemophilia A) or clotting factor IX (for hemophilia B) are slowly dripped or injected into a vein. These infusions help replace the clotting factor that’s missing or low.

What are some advances being used to treat hemophilia?

The evolution of care in

hemophilia

is a remarkable story. Over the last 60 years,

advances

in protein purification, protein chemistry, donor screening, viral inactivation, gene sequencing, gene cloning, and recombinant protein production have dramatically enhanced the

treatment

and lives of patients with

hemophilia

.

Is hemophilia treatment covered by insurance?

The majority of people with hemophilia are covered under

a commercial plan

or a public plan like Medicare or Medicaid.

Can hemophilia go away?

It lasts all of your life and it will not go away

. Hemophilia occurs mainly in males but females can carry the gene that causes it and may or may not have bleeding problems. Some children with hemophilia have no family history of the disorder.

What should you not do if you have hemophilia?

To avoid excessive bleeding and protect your joints:

Exercise regularly

. Activities such as swimming, bicycle riding and walking can build up muscles while protecting joints. Contact sports — such as football, hockey or wrestling — are not safe for people with hemophilia.

Is hemophilia A or B worse?

Recent evidence suggests that

hemophilia B is clinically less severe than hemophilia A

, highlighting the need to discuss further therapeutic options for each type of hemophilia. The study, “Haemophilia B is clinically less severe than haemophilia A: further evidence,” was published in Blood Transfusion.

What famous person has hemophilia?

The love of Elizabeth Taylor’s life and a Shakespearean actor for the ages,

Richard Burton

starred in 61 films and 30 plays — and was the first Hollywood star to reveal he had hemophilia. In fact, Burton and Taylor set up the Richard Burton Hemophilia Fund in 1964 to help find a cure for hemophilia.

What foods to avoid if you have hemophilia?

large glasses of juice.
soft drinks, energy drinks, and sweetened tea.
heavy gravies and sauces.
butter, shortening, or lard.
full-fat dairy products.
candy.
foods containing trans fats, including fried. foods and baked goods (pastries, pizza, pie, cookies, and crackers)

What is the life expectancy of someone with hemophilia?

During this period, it exceeded mortality in the general population by a factor of 2.69 (95% confidence interval [CI]: 2.37-3.05), and median life expectancy in severe

hemophilia was 63 years

.

What genotypes would the parents have to be to have a child with hemophilia?

The father only passes half of his sex chromosomes to the baby, either the X or the Y. If the baby gets the Y chromosome from the father it will be a boy. The son can get from the mother either her

X chromosome

with the hemophilia gene or her X chromosome with the normal blood clotting gene.

How does hemophilia affect the body?

Hemophilia can result in:

Bleeding within joints that can lead to chronic joint disease and pain

.

Bleeding in the head

and sometimes in the brain which can cause long term problems, such as seizures and paralysis. Death can occur if the bleeding cannot be stopped or if it occurs in a vital organ such as the brain.

Does hemophilia qualify for Medicaid?

Most people with haemophilia

qualified for Medicaid based

on ‘disability’.

Does hemophilia qualify for Medicare?

Important note for people with bleeding disorders: clotting factor (and new, non-factor hemophilia medication) is

covered under Medicare Part B

and not under the Part D drug benefit.

What is Hemlibra used to treat?

HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with

hemophilia A

with or without factor VIII inhibitors.